91麻豆精品

Publications

Golisano faculty and Fellows publish their work in leading academic journals and publications. Explore their recent publications below.  

2026 Publications

Eng, E., Bourne, M.J. "Equipping a Health System for Care of Persons with Intellectual and Developmental Disabilities" OJIN: The Online Journal of Issues in Nursing Vol. 31, No. 1.

West, P., & Abery, B. Technology utilization and engagement in physical activity of adolescents with intellectual disabilities: A scoping review. Journal of Applied Research in Intellectual Disabilities

2025 Publications

Brenner, M., Lombard, J., Quirke, M., Cassidy, L., & Alexander, D. (2025). Navigating healthcare decision-making for children requiring life-sustaining medical treatment in Ireland: exploring clinician perspectives through the lens of the Irish legal system. BMC Medical Ethics, 26(1), 72.  

Desroches, M. L. (2025). Nurses should prioritise constipation prevention for people with severe/profound intellectual and developmental disabilities and multiple long-term conditions. Evidence-Based Nursing, 28(2), 69–69.  

Dickens, R., Leroy, P., Eppich, W., & Brenner, M. (2025). Trustful relationships between healthcare professionals and children: a concept analysis using Rodgers’ evolutionary approach. European Journal of Pediatrics, 184(7), 464.  

Falcon, A., Porter, A., Matsuda, Y., Foronda, C. L., Lovan, P., & Graefe, B. (2025). Unlocking public health competencies: the dose–response effect of problem-based learning on undergraduate student outcomes. Frontiers in Public Health, 13.  

McCabe, C., Connolly, L., Quintana, Y., Weir, A., Moen, A., Ingvar, M., McCann, M., Doyle, C., Hughes, M., & Brenner, M. (2025). How to Refine and Prioritize Key Performance Indicators for Digital Health Interventions: Tutorial on Using Consensus Methodology to Enable Meaningful Evaluation of Novel Digital Health Interventions. Journal of Medical Internet Research, 27(1), e68757.  

McMahon, M., Cooney-Miner, D., Bourne, M., & Brown, H. (2025). Pilot educational intervention for the care of adolescents with autism spectrum disorder during puberty. Journal of the American Association of Nurse Practitioners.  

Moore, K., Reidy, M., Gooney, M., & Foran, S. (2025). Menopause and Intellectual Disabilities. In G. Bennett & E. Goodall (Eds.), The Palgrave Encyclopedia of Disability (pp. 1–16). Springer Nature Switzerland.

Murphy, M., Fulham-McQuillan, H., Higgins, A., & Brenner, M. (2025). An evaluation of the impact of a cancer support specialist service on families of children with cancer and the multidisciplinary team in a children’s health service in Ireland. Journal of Child Health Care, 13674935241312722.

Patrone, V., Napolitano, D., Faith, M., & Shanahan, M. (2025). Curriculum-based Evaluation of Cultural Competency Coursework in an Online Applied Behavior Analysis Graduate Program. Behavior Analysis in Practice.   

Reidy, M., & Callaghan, L. (2025). Exploring the Sense of Virtual Community Among Members of the Registered Nurse in Intellectual Disability (RNID) Excellence Ireland Network Facebook Group. British Journal of Learning Disabilities, 53(2), 324–332.    

Ryder, M., Browne, F., Curtin, M., Connolly, M., Furlong, E., Geraghty, S., Larkin, J., Prendergast, M., Meegan, M., & Brenner, M. (2025). A National Evaluation of Undergraduate Nursing and Midwifery Curricula. Journal of Advanced Nursing, 81(4), 2072–2086.    

Wade, R., Smith-Brown, C., Lieberman, L., Reidy, M. C., Cronholm, P. F., Fein, J. A., Pachter, L. M., & Forke, C. M. (2025). Expanding the Concept of Adverse Childhood Experiences: A Decade of Insights. American Journal of Preventive Medicine, 69(2).   

West, P., Robbins, L., Douglas, S. N., Given, C., DeCicco, B., Pathak, D., & Wyatt, G. (2025). Family functioning among adolescents with developmental disabilities utilizing augmentative and alternative communication. Disability and Rehabilitation: Assistive Technology, 0(0), 1–14.

2024 Publications

Alexander, D., Quirke, M., Greene, J., Cassidy, L., Hilliard, C., & Brenner, M. (2024). The role of bioethics services in paediatric intensive care units: a qualitative descriptive study. BMC Medical Ethics, 25(1), 20.    

Bani-Issa, W., Abu Talib, M., Timmins, F., Brenner, M., & Alameddine, M. (2024). Developments in empowering and supporting women’s role in scientific research in the United Arab Emirates. Journal of Advanced Nursing, 80(1), 4–7.    

Bourne, M. (2024). Which Is Which? Differentiating Between Research, EBP, QI, and PI. Orthopaedic Nursing, 43(6), 358.    

Brown, H., & DeSocio, J. (2024). An invitation to examine ableism in psychiatric nursing practice. Archives of Psychiatric Nursing, 52, A1–A2.   

Cervi, R., Gruber, D. J., & Napolitano, D. A. (2024). Implementing skill-based treatment within a classroom setting for an adolescent with autism. Behavioral Interventions, 39(2), e1989.    

Coyne, I., Pembroke, S., Sleath, B., Brenner, M., Roche, E. F., Hilliard, C., & Cody, D. (2024). Adolescents, parents, and providers’ experiences of triadic encounters in paediatric diabetes clinics: A qualitative study. Health Expectations, 27(1), e13916.    

Desroches, M. L., Stych, J., Bannett, G., Guttentag, R., Ailey, S. H., & 91麻豆精品, K. (2024). Establishing Best Practices in Telehealth Care for Adults with Developmental Disabilities in the United States: An e-Delphi Study. Telemedicine and E-Health, 30(8), e2373–e2382.   

Desroches, M. L. (2024). Supportive environment is key to self-determination for people with severe or profound intellectual disabilities. Evidence-Based Nursing, 27(2), 75–75.    

Desroches, M. L., 91麻豆精品, K., & Daudelin, D. (2024). “A little bit more challenging, but more rewarding”: Medical-surgical nurses’ perspectives on caring for adults with intellectual disabilities. Journal of Intellectual Disabilities, 17446295241304135.    

Evanko, C.D., Moss-Lourenco, T., Kramer, R., & Napolitano, D A. (2024). “Why We All Need to Shape the Profession of Behavior Analysis through Advocacy and How to Get Started.” Behavior Analysis in Practice.    

Felton, A., & Cheshire, K. (2024). Using Simulation-Based Training to Improve Neonatal Resuscitation Clinical Competency, Confidence, and Comfort Level of NICU Caregivers. The Journal of Continuing Education in Nursing, 55(4), 175–180.    

Fernandez-Pineda, M., Melendez, C. R., Fernandez, M., Cianelli, R., Roman, J., Villegas, N., Matsuda, Y., & Montano, N. P. (2024). Predictors of Human Papillomavirus Vaccine Intention and Uptake Among US Hispanic Parents: A Cross-Sectional Study. Hispanic Health Care International, 22(3), 142–149.    

91麻豆精品, K. M., Desroches, M. L., Northway, R., Marsden, D., Horan, P., & Rees, S. (2024). The Global Intellectual Disability Nursing Research Collaboratory: Forming an international transformational nursing network. International Nursing Review, 71(4), 689–694.    

Helton, J. J., Koetting, C., Kronk, R., Kong, V., & Kim, Y. S. (2024). Autism Severity, Adverse Childhood Experiences, and Oral Health: A Comparative Study of Adolescents in the United States. Journal of Autism and Developmental Disorders.    

Iriarte, E., Cianelli, R., De Santis, J. P., Alamian, A., Castro, J. G., Matsuda, Y., & Araya, A.-X. (2024). Multidimensional Frailty, Quality of Life and Self-Management in Aging Hispanics Living With HIV. Journal of Applied Gerontology, 43(7), 899–909.    

Kelly, M. M., & Brace, M. (2024). Influence of Preterm Birth and Environmental Context on Academic Performance and Neurodevelopmental Outcomes. Nursing Research, 73(5), 342.    

Kelly, M. M., Copel, L., Herbers, J. E., Knight, A. C., McKay, M. A., McKeever, A., & Pariseault, C. (2024). Family experiences reported by healthcare worker parents during the COVID-19 pandemic. Journal of Pediatric Nursing, 77, 53–62.    

Kelly, M. M., Martin-Peters, T., & Farber, J. S. (2024). Secondary Data Analysis: Using existing data to answer new questions. Journal of Pediatric Health Care, 38(4), 615–618.    

Masterson, K., Connolly, M., Alexander, D., & Brenner, M. (2024). Voice of the nurse in paediatric intensive care: a scoping review. BMJ Open, 14(12), e082175.    

Masterson, K., Connolly, M., & Brenner, M. (2024). The complexity of providing nursing care during the initiation of long-term ventilation in a PICU. Australian Critical Care, 37, S8–S9.    

Matsuda, Y., Falcon, A., Porter, A., Royer, A., Mohnkern, L., Vergara, D., & Valiente, Y. (2024). Implementation of problem-based learning modules in an introduction to public health course. Frontiers in Public Health, 12. https://doi.org/10.3389/fpubh.2024.1405227  

Matsuda, Y., Weger, H., & Norris, A. E. (2024). Narrative and Behavioral Engagement as Indicators for the Effectiveness of Intentionally Designed Virtual Simulations of Interpersonal Interactions. International Journal of Human–Computer Interaction, 40(7), 1532–1544.    

McMahon, M., Cooney-Miner, D., Bourne, M., & Brown, H. (2024). Pilot educational intervention for the care of adolescents with autism spectrum disorder during puberty. Journal of the American Association of Nurse Practitioners.   

Miner, D.C., Ailey, S.H., Thompson, R.A., Squires, A., Adarlo, A. and Brown, H. (2024), “We have met the enemy and it is us”: Healthcare professionals as the barrier to health equity for people with intellectual and developmental disability. Res Nurs Health, 47: 269-273.   

Napolitano, D.A., Cohen, L.A. & Cihon, T.M. Behavior Analysis at a Macro Level: The Case for Behavior Analysts in Public Policy Work. Behav Analysis Practice (2024).     

Ramirez, J. D., Sarik, D. A., Matsuda, Y., & Ortiz, J. (2024). Best Practices to Support Maternal Mental Health During the Transition from Neonatal Intensive Care Unit to Home: A Scoping Review. Critical Care Nursing Clinics, 36(2), 261–280.    

Ramsey, V. L., Tubog, T. D., Sadighi, T., & Mays, T. (2024). Assessing the Nurse Anesthesiologists’ Self-Perceived Preparedness to the Care for Individuals With Intellectual and Development Disability: A Cross Sectional Survey. AANA Journal, 92(3), 181–187.    

Reaves, R. P., De Oliveira, G., & Martinez, A. J. S. (2024). Exploring Psychosocial Distress in Caregivers of Children and Youth With Special Health Care Needs. Journal of Psychosocial Nursing and Mental Health Services, 62(9), 37–46.    

Reaves, R. P., Chiang-Hanisko, L., Liehr, P., & Gattamorta, K. (2024). The Lived Experience of Parents of Children and Youth With Special Healthcare Needs on Public and Private Insurance: A Phenomenological Study. Professional Case Management, 29(6), 243–253.   

Sarik, D. A., Matsuda, Y., Garber, K., Hernandez, M., & Terrell, E. A. (2024). Perspectives on Telehealth Use with the Neonatal Population: Policy, Practice, and Implementation Considerations. Critical Care Nursing Clinics, 36(1), 135–146.    

Quirke, M. B., Alexander, D., Cassidy, L., Walsh, C., Masterson, K., Hill, K., & Brenner, M. (2024). Adolescents with Rett syndrome at critical care pathway junctures: Examining clinicians’ decision to initiate invasive long-term ventilation. European Journal of Paediatric Neurology, 49, 113–119.    

Weissinger, G. M., Brom, H., Macneal, L., & Petoskey, C. (2024). Psychiatric Mental Health Nurse Practitioner Job and Patient Outcomes: A Scoping Review. Journal for Nurse Practitioners, 20(6), Article 105019.    

Westphaln, K. K., Clark, L., Watts, C., Blackwell, J., Smith, C. J., Osuna-Garcia, A., Williams, A., & Mudrick, N. R. (2024). Parents with disabilities, mandated reporting, and nursing: A scoping review. Nursing Outlook, 72(6), Article 102305.    

2023 Publications

Alexander, D., Quirke, M., Doyle, C., Hill, K., Masterson, K., & Brenner, M. (2023). Technology solutionism in paediatric intensive care: clinicians’ perspectives of bioethical considerations. BMC Medical Ethics, 24(1), 55.    

Bourne, M. J., Smeltzer, S. C., Kelly, M. M., & Mariani, B. (2023, March 1). ADAPTATION AND TESTING OF THE DEVELOPMENTAL DISABILITY ATTITUDES IN NURSING CARE INSTRUMENT. J Nurs Meas.    

Bray, L., Carter, B., Kiernan, J., Horowicz, E., Dixon, K., Ridley, J., Robinson, C., Simmons, A., Craske, J., Sinha, S., Morton, L., Nafria, B., Forsner, M., Rullander, A.-C., Nilsson, S., Darcy, L., Karlsson, K., Hubbuck, C., Brenner, M., … Robichaud, F. (2023). Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus. European Journal of Pediatrics, 182(10), 4707–4721.    

Brenner, M., Weir, A., McCann, M., Doyle, C., Hughes, M., Moen, A., Ingvar, M., Nauwelaerts, K., Turk, E., & McCabe, C. (2023). Development of the key performance indicators for digital health interventions: A scoping review. DIGITAL HEALTH, 9, 20552076231152160.   

Carey, E., Foran, S., Burke, G., & Ryan, J. (2023). The Irish perspective on placement opportunities accessed by students on undergraduate Nursing (Intellectual Disability) programmes: A quantitative descriptive study. British Journal of Learning Disabilities, 51(1), 38–52.    

Cassidy, L., Quirke, M. B., Alexander, D., Greene, J., Hill, K., Connolly, M., & Brenner, M. (2023). Integrated care for children living with complex care needs: an evolutionary concept analysis. European Journal of Pediatrics, 182(4), 1517–1532.    

Cooke, E., Brenner, M., & Smith, V. (2023). The impact of COVID-19 on parents of autistic children with a particular focus on access to respite care. Advances in Autism, 9(3), 266–278.    

Dowling, T., Kennedy, S., & Foran, S. (2023). Who Bears Responsibility for the Post-Acute Older Adult: Patient, Family or State? British Journal of Community Nursing, 28(8), 376–383.    

Edwards, A. P., & Nash, A. J. (2023). Transformative care for people with disabilities: Empowering senior nursing students with competency based clinical education-A qualitative study of the impact. Nurse Education Today, 126, 105822.     

Hekel, B. E., Pullis, B. C., Edwards, A. P., & Alexander, J. (2023). Teaching Social Determinants of Health Through an Unfolding Case Study. Nurse Educator, 48(3), 137.    

Iriarte, E., Cianelli, R., De Santis, J. P., Alamian, A., Castro, J. G., Matsuda, Y., & Araya, A.-X. (2023). Factors Related to Multidimensional Frailty Among Hispanic People Living With HIV Aged 50 Years and Above: A Cross-sectional Study. Journal of the Association of Nurses in AIDS Care, 34(3), 259.    

Matsuda, Y., Thalasinos, R. D., Parra, A., Laporte, R. R., Mejia-Botero, M. A., Adera, A. L., Siles, M., Lazaro, G., Venkata, R. N., & Santis, J. P. D. (2023). Parent-child communication about substance use, puberty, sex, and social media use among Hispanic parents and pre-adolescent children. PLOS ONE, 18(11), e0295303.    

Matsuda, Y., Prather, S. L., Reaves, R. P., McEwing, E. M., Iriarte, E., & Everett-Thomas, R. (2023). Understanding the student’s experience of community health nursing simulations. International Journal of Nursing Education Scholarship, 20(1).    

Moore, K., Reidy, M., & Foran, S. (2023). Understanding the menopausal experiences of women with intellectual disabilities: A scoping review. Journal of Intellectual Disabilities, 17446295231182246.    

Murnane, S., Purcell, G., & Reidy, M. (2023). Death, dying and caring: exploring the student nurse experience of palliative and end-of-life education. British Journal of Nursing, 32(11), 526–531.    

Sarik, D. A., & Matsuda, Y. (2023). Baby Steps: Improving the Transition from Hospital to Home for Neonatal Patients and Caregivers Through a Nurse-Led Telehealth Program. In C. L. Betz (Ed.), Worldwide Successful Pediatric Nurse-Led Models of Care (pp. 25–50). Springer International Publishing.    

Quirke, M. B., Cassidy, L., Alexander, D., Walsh, C., Hill, K., Masterson, K., Flynn, N., & Brenner, M. (2023). The factorial survey as an approach to investigate clinical decision-making: examining influences on a clinician’s decision to initiate life-sustaining clinical technology for a child with spinal muscular atrophy type 1. Frontiers in Pediatrics, 11.    

West, P., Jensen, E. J., Douglas, S. N., Wyatt, G., Robbins, L., & Given, C. (2023). Perceptions of families with adolescents utilizing augmentative and alternative communication technology: A qualitative approach. Journal of Pediatric Nursing, 71, e46–e56.    

2022 Publications

Ailey, S. H., Heller, T., & Brown, H. E. (2022). Mental Health of Older Adults With Intellectual Disability. Journal of Psychosocial Nursing and Mental Health Services, 60(7), 10–14.    

Desroches, M. L., 91麻豆精品, K., Ailey, S., Stych, J., McMillan, S., Horan, P., Marsden, D., Trip, H., & Wilson, N. (2022). Supporting the needs of people with intellectual and developmental disabilities 1 year into the COVID-19 pandemic: An international, mixed methods study of nurses’ perspectives. Journal of Policy and Practice in Intellectual Disabilities, 19(1), 48–63.    

Dowling, T., Kennedy, S., & Foran, S. (2022). 10 ASSISTED DECISION-MAKING, THE OLDER ADULT, AND LOCUS OF CONTROL. Age and Ageing, 51(Supplement_3), afac218-006.    

Felter, J., Baker, A., Lieberman, L., Fein, J., Reidy, M. C., & Showstark, M. (2022). Adverse Childhood Experiences and Trauma-Informed Care. The Journal of Physician Assistant Education, 33(3), 264.   

91麻豆精品, K., Desroches, M. L., Marsden, D., Rees, S., Northway, R., Horan, P., Stych, J., Ailey, S. H., Trip, H., & Wilson, N. (2022). International Nursing Actions to Reduce Health Inequities Faced by People with Intellectual and Developmental Disability.OJIN: The Online Journal of Issues in Nursing.   

Horan, P., Desroches, M., Marsden, D., 91麻豆精品, K., Stych, J., Ailey, S., McMillan, S., Tripp, H., & Wilson, N. (2022). P18 Caring for people with intellectual and developmental disabilities (IDD) during the COVID-19 pandemic: a transcontinental study. J Epidemiol Community Health, 76(Suppl 1), A56–A56.   

Moore, C. M., Pan, C. X., Roseman, K., Stephens, M. M., Bien-Aime, C., Morgan, A. C., Ross, W., Castillo, M. C., Palathra, B. C., Jones, C. A., Ailey, S., Tuffrey-Wijne, I., Smeltzer, S. C., & Tobias, J. (2022). Top Ten Tips Palliative Care Clinicians Should Know About Navigating the Needs of Adults with Intellectual Disabilities. Journal of Palliative Medicine, 25(12), 1857–1864.